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Data Protection Privacy Notice for Patients - GDPR

Your data - data opt-outs for planning and research

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If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both. These opt-outs are different and they are explained in more detail on the following page of the NHS Digital website:

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https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/transparency-notice

Your individual care will not be affected if you opt-out using either option.

NHS Digital will not collect data from GP practices about patients who have registered a Type 1 Opt-out with their practice. See the following information here:

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/secretary-of-state-letter-to-general-practice

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Patients do not need to register a Type 1 Opt-out by 1 September to ensure their GP data will not be uploaded.

Your data - General Practice Data for Planning & Research Programme (GPDPR) deferred

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NHS Digital and the Government announced recently that they have agreed to delay the introduction of the new General Practice Data Programme (GPDPR).  Patient data used for life-saving research will benefit from even greater protection and assurances owing to tougher safeguards that will be put in place ahead of the GPDPR rollout.  

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While NHS Digital will continue to develop the infrastructure and engagement for the programme, they are not setting a specific start date for the collection of data. This means that the 1 September date no longer stands.

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Data collection will now only begin when the following criteria have been met:

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• The ability for patients to opt out or back in to sharing their GP data with NHS Digital, with data being deleted even if it has been uploaded, and outstanding opt outs being processed.

• A Trusted Research Environment is available where approved researchers can work securely on de-identified patient data which does not leave the environment, offering further protections and privacy while enabling collaboration amongst trusted researchers to further benefit patients.

• A campaign of engagement and communication has increased public awareness of the programme, explaining how data is used and patient choices

Should you still wish to amend your data sharing preferences then please see below:

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National Data Opt-outs are managed through NHS Digital and not by the practice. Please follow the link below to set opt-out preferences: